Friday, 25 February 2011

Confusing times

I have been sent some information about conflicting research done.  I find it all a bit confusing, but then I do have M.E.  I know for a fact that my own health has improved by pacing and resting.  Learning more about the illness and avoiding situations that will make it worse.  This is sometimes very hard to put into practice.  I find it hard to explain to my friends and family that background noise and a lot of talking give me 'Brain Fog',  its like my brain cannot cope and goes into foggy mode.  It's very annoying and extremely hard for other people to comprehend.

 I am continuing to write, all be it very slowly.  Criticism is always hard to take as it is now one of the only things left I can achieve as a career.  My best friend says I am too hard on myself and I should do it as a hobby and not put pressure on myself to get things published.  I am determined though to not let life pass me by without achieving something worthwhile.  When I meet new people now, I tell them straight away what my health problems are to get it out of the way.  This make things much easier for me to deal with.  The future is uncertain but each day brings a new challenge.

http://www.mefreeforall.org/index.php?id=2694#c10317

2 comments:

Anonymous said...

Hi. I also have ME/CFS and can relate to much of what you say.

I'm also intereted in writing - although it is not a priority right now where I'm at with things. I'd like to get back into it again one day. I did a six month writing course some time back. It took me a while to get used to the idea of criticism. However, when i could learn from it I reaised i was able to get something out of it.

Unknown said...

Hi, so nice to hear from you. I do a distance learning course with the writers bureau. I can do it in my own time and my tutor gives me feedback by post. It is a great learning a new skill as I am unable to do a 'Normal Job' anymore. Thanks for reading my blog, its therapy for me and I hope to help others along the way. Having M.E. can sometimes be a lonely and depressing illness.
Keep in touch.
Fiona