forgotten blog

We her we are now in Jan 2010. A lot has happened to me in this time. I had Spinal Decompression surgery in Jan 2009 and had to recover from that operation. All I can say is that at least the doctors are listening to me now and I had the extra bag of fluids I needed not to get the dreaded ME headache.

At slight problem to my recovery, fell backwards on to my back and hit my head (don,t know how) fracturing my sacrum. This hurt like hell and could not sit or lie on my back for 6 weeks and went back to using crutches. I have had a few other slip ups but laugh at myself and my crap leg/balance !

Moving onwards and at present I had been to Wareham Hospital for Lifestyle Management and now understand more about my illness. Acceptance is still a problem as I dont want to accept that I will have this Illness forever. I have been writing which is therapy to me, but sometimes its not as good as others. I have met many new fantastic people in the Dorset ME Support Group and my creative writing group at Weymouth Library.

I am at present embarking on a new diet after going to see an Allergist in Weymouth. There is a lot of stuff writen about Candida and Gluten and How it effects people with ME, so giving it a go.
It is Gluten, Yeast, Dairy and Sugar free, no tomatoes, pototoes, tea, coffee, mushrooms, apples, oranges, lemons or mandarins. It also showed up I had a deficency in Minerals Vit c and Vit B6 and Iron so am now taking a supplement. I am have nearly completed a week and will publish some recipes at a later date. I can now see my tongue is pink not white.

I also have been doing a shoe auction for the Dorset Support Group and got to meet Jim Knight MP who donated a pair to me. So things have changed and I enjoy different things now

Well have been visited by my bosses to day. Only cried twice what a baby, but perhaps they would like to have to walk with a walking stick. Why does everyone look at you as you have two heads when you are young, well sort off i am only 40 and walk like a wonky donkey ha ha!. My mum is brilliant she should be only the stage permanently, she was telling them all about her current play she will be directing. She always reminds me of Julie Walters. But i love her too bits. I think my kids have got used to me being at home, they just want me to phone people and tell them I get disability allowance so can they get more money. I suppose they deserve it. The funny thing is since my daughter has been 18 and going out on the town. I have been too ill too. I was not looking forward to seeing he rbeing oggled at by men I would probably punch them. As when I get drunk I become suddenly invincible. I should fight all my battles drunk!!!!!!!!!

Why did i get M.E.

We women cannot have it all. Wife, mum, friend and hold down a full time job. Fiona Philips from GMTV would probably agree. I ws trying to hard to keeping everyone happy and my health was the one that suffered. it should be a warning. Plus I had crap doctors. They made me worse not better. Now after two years of battling to get help and talking about M.E. enough people are finally waking up to the fact that I have it. There has been may tears and much pain and too many visits to doctors and specialists which has taken money and time wasted in my life. If there is any one out there that knows anyone that has M.E. i urge them to contact me as I am going to try and help as many people as I can not to go through what I have.

Got shingles April 2006
Back to the doctors many times developed right side weakness.
Had MRI scan July 2006 on my brain and neck
Had Evoked Potentials (Electrodes on my brain)
Blood tests
Got diagnosed with Chronic Fatigue Syndrome in September 2006
Got told to go back to work and just get on with it Oct 2006
Decided not to return to my stressful full time job so quit
Got a new tempoary job. Lost my job in Jan 2007 diagnosed with Anaemia after more blood tests.
Got a new job April 2007. Starting having more problems.
After getting a book from the library asked my doctor if I had M.E. she said yes and told to live with it.
Had relapse Jan 2008 struggled to keep going.
Further tests neurological tests, another MRI suggested.
Another relapse May 2008 very close to nervous breakdown, not coping well.
June 2008, revelation changed doctors. New MRI scan on back done.
Found Spinal problem told should have epidural and then FINALLY referred to M.E. Clinic
August 2008 Epidural not good headaches and felt like my spine on fire.

Well I am now disabled have to sell all my high heels and wold love to be able to dance with my friends once more. I miss having a social life a lot. So I shall just have to learn to do something else!